I have been at a loss for what to tell a fellow child of someone suffering ALS. The forums, the organizations - it all comes across as saccharine. None of it touches the reality of the pain you are experiencing.
May you bring light to your mom. And may she continue to bring light to you for all of your days. You are forever each other’s loved one and ALS cannot take that away.
Encourage your dad to take what support he can find. Caregiving is hard emotionally and physically.
I wish you all the constant reminder of each other’s love. You are facing this trauma together. But love is sweet and everlasting.
Thank you for these words, the solidarity, your incredibly generous donation and sound advice. Yes, my Dad is definitely going to need more and more support as he supports my mom day to day. It’s really hard to live so far away right now. I’d be over there every day helping with little domestic things that add up quick when you are also a person’s caregiver. I’m not sure what the next year will look like. I’m figuring there will be a need for longer visits. Thank you again ❤️
I’m more than honored being able to contribute. It’s a strange and wonderful thing to be able to give back to you and your family. Lou’s music absolutely changed the trajectory of how I appreciate and connect with music - he’s been happily in my head and ears since I was a teen. And your pod gives me couple goals. Then there’s ALS. I have so much to pay forward for the kindnesses of others there. I cried typing my dad’s name in the “in memory of” field. I really hope every dollar makes it less likely some other schlub has to fill in such a field.
I have been at a loss for what to tell a fellow child of someone suffering ALS. The forums, the organizations - it all comes across as saccharine. None of it touches the reality of the pain you are experiencing.
May you bring light to your mom. And may she continue to bring light to you for all of your days. You are forever each other’s loved one and ALS cannot take that away.
Encourage your dad to take what support he can find. Caregiving is hard emotionally and physically.
I wish you all the constant reminder of each other’s love. You are facing this trauma together. But love is sweet and everlasting.
Thank you for these words, the solidarity, your incredibly generous donation and sound advice. Yes, my Dad is definitely going to need more and more support as he supports my mom day to day. It’s really hard to live so far away right now. I’d be over there every day helping with little domestic things that add up quick when you are also a person’s caregiver. I’m not sure what the next year will look like. I’m figuring there will be a need for longer visits. Thank you again ❤️
I’m more than honored being able to contribute. It’s a strange and wonderful thing to be able to give back to you and your family. Lou’s music absolutely changed the trajectory of how I appreciate and connect with music - he’s been happily in my head and ears since I was a teen. And your pod gives me couple goals. Then there’s ALS. I have so much to pay forward for the kindnesses of others there. I cried typing my dad’s name in the “in memory of” field. I really hope every dollar makes it less likely some other schlub has to fill in such a field.
I wish I could do more. Best to you all.
🩵